Funny story. While I was bringing my rig in to Eagle Ridge to shoot Tricia and Jason’s wedding in May, Ben approached me in the parking lot, asked me if I was a photographer and asked for my card. They had just booked their wedding there and were beginning the planning process. A funny coincidence...
shannon you should really shoot more weddings …. these are great!
Gorgeous, gorgeous!!! My favorite one is of Dave though. So awesome. 
Beautiful photos. Love the umbrella shot and dancing shot. great emotion.
Shannon – We love all of the moments that you were able to capture for us!
Shannon and Dave, you guys were so awesome at our wedding!
We are so thankful that we accidentally found you!
Jen & Ben
I hope you have that one of Dave framed and on the mantel at home!
I’ll get back to the iPhone Wednesdays next week… but I felt like using a decent picture for this post.This picture was taken a few weeks ago during those crazy fires… the sky was totally orange and the light was really trippy. Matthew. My no-nonsense kid. He means well, but sometimes his honesty is too...
by shannon
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During the olympics I said that Phelps had some big guns (big mistake) anyway — Spencer then went about trying to find my guns. It was painful (emotionally). I suppose it’s time to step-up my weights work as well.
haaa….kids crack me up!
And gorgeous pic…his eyes are amazing!
Awesome photo! Sounds like quite a character.
he’s is such a handsome little guy ….love those eyes!
Naomi is still asking if my stomach will get flat again. My mom once told me, “nobody can tear you down like your own kids.” yeah
If you’ve been following the blog for a while, you may remember seeing Michael before. Michael has a genetic condition called Epidermolysis Bullosa. It’s a condition where his body doesn’t produce collagen 7, and therefore lacks the strength and elasticity of normal skin. His skin is extremely fragile, and the simplest contacts can cause blistering...
by shannon
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The picture of him with the tears on his cheek seriously breaks my heart 
I don’t know what is worse…the pictures of the blisters or the picture of him with the tears. Poor baby. Great job capturing what they go through every night. My heart is touched.
These pictures are so tender and moving. One of our friends has a child with this condition. Thank you for bringing awareness to it.
Your pictures are incredible. I am the mom to an amazing boy who also has rdeb. Thanks for letting others see just exactly what our kids deal with.
This is soooo touching…. and soooo true. I am the mother of a 15 year old son with the same type of EB and after having a difficult bandage change ourselves this morning, I am deeply touched by how you managed to capture the emotions around this. Thank you so much for sharing this on your weblog and for the awareness this will bring to the world. Sincerely – Liesbeth, mom to 15 year old Dennis from the Netherlands.
the tears brake my heart, seeing the smile on his face knowing he loved.
I too am the mom to a sweet lil girl who also has EB. Its hard doing all the bandage changes but its become a part of our daily life. Its not something thats fun at all. I think the pictures are beautiful!!! It also brought tears to my eyes as we see similar each and every day. Bless lil Michael….what a lil sweetie!!
My son, Phoenix, has EB and I, too, know those pleading and crying eyes. Michael seems to have it much worse than Phoenix and my heart goes out to you both. The pictures are beautiful and thank you so much for sharing. Sometimes it feels like you are so alone in the battle; seeing these makes me realize that we are not.
I’m 52 and also have EB…Junctional EB. Even though I know first hand the horrors and constant pain EB entails, it broke my heart to see this little guy go through his bandage change. Your photos and video will be amazing for EB Awareness. Heather & Michael are courageous in sharing this very personal part of their lives with the world. Thank you.
I’m 20 and have RDEB, I know how horrible every bandage change can be. I was in tears seeing this beautiful little guy go through that. I can only pray, and hope that cure comes fast. I dont think it could come fast enough for me. I hope Michael gets better. -Dona
Wow–this breaks my heart. I’m sure that was hard to watch. Just seeing the pictures makes me cry! Poor little guy. I hope they find a cure soon!! God bless all of you dealing with this awful disease!
These are beautiful, touching, and heartbreaking pictures, Shannon. Thank you for sharing them!
That breaks my heart that he has to go through that. Bless his little heart, and his parents too.
awww those pictures are heartbreaking. You captured something so difficult, so very well, I love the photojournalistic feel these have.
Those tears and sad face just break my heart. Poor little guy, and poor mama too, I can’t even imagine how painful this must be for both of them. Love the last one with him smiling through the tears, so so sweet. Sending lots of prayers and good thoughts their way!
These pictures are so true what our children go thru on a daily basis with EB. Great job showing others just what EB is all about.
Oh, poor kid. The first two photos are heartbreaking.
Oh Shannon, I was such a mess watching that slide show. You captured so much with your pictures. My heart goes out to this family and all that they deal with.
That slide show is incredible. How does she do it EVERY night. All the moms dealing with this I am in awe of you!
Ohhhhhhhhhh Shannon, I just started bawling. This breaks my heart..you really captured the emotion.
I pray they find a cure for Michael. Thank you for sharing.
erin
Hi Shannon,
I’d really like to follow up on these pictures with you. I work for DEBRA Ireland and we were extremely moved by them. If you’d in interested in discussing further, maybe you could email me on anna@debraireland.org
Kind regards,
Anna
Shannon,
Thank you for posting about this to raise awareness. My heart and prayers go out to this brave and adorable little boy and his family.
Krista
iPhone Wednesday again! I think I’m already getting bored with it.But I’ll keep going for a bit… This one is a very special one for me. One day while eating lunch with Sophia and Franklin, I was overcome with happiness and gratitude for a really wonderful thing in my life, and I had to pause...
by shannon
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You have no idea how much we miss the Burrito Factory down here. You would think San Diego would have mean Mexican food…and I’ll give them the fish taco…but can’t find a super burrito to save my life.
You are hitting my weak spot. I am salivating at my computer…..
I love i phone Wednesday. You can’t stop it!
that burrito looks delish!!!
Ok… time to share some more of my favorite bad photos! I don’t know about BAD, per se, but definitely not portfolio-worthy. But I love them… Today’s edition of iPhone Wednesday features Matthew being Matthew. These demonstrate the essence of my boy. Total goofball, trying not to crack a smile. What’s that on his face,...
by shannon
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Shannon- That is SO great. What a funny guy?! I like these iPhone Wednesdays.
by shannon
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